Hi all, time for an update on the development of my son. PJ was seen on 12/15 for his 15 month check up. He weighed in at 20 lbs, 4 oz (just under the 50th percentile on the Down syndrome growth chart) and measured 28" long (just over the 10th percentile on the same chart) What does this mean? It means he's a shorty, and his weight gain has slowed down a lot.
The reason for the slow weight gain is because he's been spitting up/vomiting since July. At first I thought it was just baby reflux, and his Dr. put him on zantac, and all the advice I got pretty much said, well, as he gets more mobile, more upright, you'll likely see this lessen. OK, I patiently waited. (right, not so patiently) He became more mobile, and more upright, the spitting up continued. We switched him to prevacid and his pediatrician had a swallow study and an upper GI done. Results? Mild and infrequent aspiration, no thin liquids. OK. We also had a referral to see a pediatric gastroenterologist, but the first appointment they could get me was for November. OK, while waiting for that to happen, we switched from Prevacid to Prilosec. No change. A few people said that maybe at one year, when he changed from formula to whole milk things would get better. Well, they did not. In fact, it was worse in that the milk would come up curdled, and talk about STINK? ugh. So, I'm thinking, lactose intolerance? I switched him to soy milk. A day or two of relief, but then the spitting up started right back up. I gave up on the reflux meds and eventually the spitting up became acidic. You know, VOMIT. Stinky vomit. (ok, sorry) So, he's back on the prilosec, it doesn't stop the vomit, but it will at least keep the acid down to avoid damaging the esophogus.
We saw the Ped. GI in November and his thought is Celiac Disease. (intolerance to gluten, found in wheat) The way to treat? Gluten free diet for life. He drew blood, BUT, (says the Dr.) the blood test is often inconclusive, can give false positive, so the REAL test for Celiac is an endoscopy. It's scheduled for 12/31. It was scheduled earlier, but we had to postpone because PJ got congested, and they wont do it while there's congestion. So, the throwing up continues, laundry for PJ happens all the time. I really don't think it's Celiac disease. There's a few OTHER things it can be, and they are all taken care of with surgery. I don't look forward to any of it. Whatever the problem, I'm just not happy about it.
I spoke with the Nurse at the Ped GI Yesterday (12/17), and she indicated that it is NOT Celiac, and that false positives sometimes occur, but not so much false negatives. Yay)I also spoke with Leah on the phone the other day, and she gave me a lot of ideas about what could it be, and helped me to make a list of questions to ask the Dr for further diagnostic tests and questions. (Thank you so much, Leah!)
On the other hand, PJ is a mostly happy baby, crawling all over the place, pulling to stand, and now standing up without assistance. He can stand 30 seconds or so without holding onto anything, and any minute now he's going to start walking. (*fingers crossed*) He babbles a lot, different sounds, yells a lot, loves his big sister Rebecca, claps his hands, gives high fives, plays peek-a-boo, puts his hands up for "so big", and is really "on the go"
I'll update again after the endoscopy. Or before if something else happens.
One other thing - a question for anyone - you know the little things we put on our blogs that show the our kids ages? The tickers? I would sure love a ticker that I could update with weight and height growth, for keeping track purposes. Anybody familiar with that? Or anybody smart enough to create one? I can't be the only person who would be interested in one, right?
Thursday, December 18, 2008
Friday, December 12, 2008
Fa la la la la la la la la la.
Hi folks and Merry Christmas. I know I've been a bit scarce of late, and I think it must be a personality trait of mine, when I get stressed out, I become silent. Sometimes it's a good thing, and sometimes not so good. I'm going to be asking you for help, so a brief rundown is called for:
Daniel's unemployment ran out 3 weeks ago. We continued to file for benefits, because that's how you access the emergency unemployment. Well, a week or so later he got a letter in the mail that he had not paid in enough to qualify for the emergency unemployment benefits. Normal unemployment here in NC is 26 weeks. Daniel got 13 weeks. I guess because of the amount of time he worked here in NC, or maybe the dollar amount. I don't know, I can't figure out the "ever changing to not help out those in need" rules from day to day. Sorry, I don't mean to sound bitter, in fact, I'm a happy person even with no money. The problem is, My landlord isn't of the mind that just because we lost our income that we get a "pass". The Electric company, same thing. The house we live in is all electric, and we've had an unseasonably cold Autumn, so the heat has been running, and the light bill is $180.00 this month. My mom has made sure that the kids have a Christmas. It will be lighter than the norm, but that's ok, my kids are loved and don't need much. I know I should ask my church for help, but to be honest, I haven't gone to church. I will, I need to, I want to, BUT... How hypocritical to start going just to ask for help? I can't do it. That's why I'm here, laying it on the line to you. Those of you who "know" me because we've been "e-friends" for awhile, know that this is not something I do on a regular basis, nor have I ever done. I just hope that some of you are in a position to help. I'm looking for work, have been to two staffing agencies and on one interview, which that company is looking to interview a few more people next week and make a decision the week after that. I'm told I'm in the running for that one, and I certainly hope for the best, but if they haven't already decided on me, who says they will?? I look everyday for work, send off my resume whenever I see something I can do, but I know that I'm not anywhere near the only person in the same boat, and I don't know how long it will be before there's actually an income. Daniel installs HVAC units in new construction homes. New construction does not exist in NC right now due to the economy. One of us needs to stay home with PJ, because we don't have, nor can we afford daycare. It SHOULD be easier for me to find work than Daniel; he looks everyday, but there's nothing out there for him right now.
My mom, on a very limited income, will of course let us move back in with her, if it comes to that. Let me just say that I will do that if it comes to that, but NONE of us want to move, and especially into her little house. There's really no room for us. I just think that with another month or two, one of the two of us can land a job so that we can remain independent.
So that's where we are. In my profile there are a few different ways to get a hold of me, or you can comment here and I'll send you my address, If you are in a position to help. This is not easy, but we really need a hand. If you've made it to the end of this post, thank you for reading. Thank you for caring.
Daniel's unemployment ran out 3 weeks ago. We continued to file for benefits, because that's how you access the emergency unemployment. Well, a week or so later he got a letter in the mail that he had not paid in enough to qualify for the emergency unemployment benefits. Normal unemployment here in NC is 26 weeks. Daniel got 13 weeks. I guess because of the amount of time he worked here in NC, or maybe the dollar amount. I don't know, I can't figure out the "ever changing to not help out those in need" rules from day to day. Sorry, I don't mean to sound bitter, in fact, I'm a happy person even with no money. The problem is, My landlord isn't of the mind that just because we lost our income that we get a "pass". The Electric company, same thing. The house we live in is all electric, and we've had an unseasonably cold Autumn, so the heat has been running, and the light bill is $180.00 this month. My mom has made sure that the kids have a Christmas. It will be lighter than the norm, but that's ok, my kids are loved and don't need much. I know I should ask my church for help, but to be honest, I haven't gone to church. I will, I need to, I want to, BUT... How hypocritical to start going just to ask for help? I can't do it. That's why I'm here, laying it on the line to you. Those of you who "know" me because we've been "e-friends" for awhile, know that this is not something I do on a regular basis, nor have I ever done. I just hope that some of you are in a position to help. I'm looking for work, have been to two staffing agencies and on one interview, which that company is looking to interview a few more people next week and make a decision the week after that. I'm told I'm in the running for that one, and I certainly hope for the best, but if they haven't already decided on me, who says they will?? I look everyday for work, send off my resume whenever I see something I can do, but I know that I'm not anywhere near the only person in the same boat, and I don't know how long it will be before there's actually an income. Daniel installs HVAC units in new construction homes. New construction does not exist in NC right now due to the economy. One of us needs to stay home with PJ, because we don't have, nor can we afford daycare. It SHOULD be easier for me to find work than Daniel; he looks everyday, but there's nothing out there for him right now.
My mom, on a very limited income, will of course let us move back in with her, if it comes to that. Let me just say that I will do that if it comes to that, but NONE of us want to move, and especially into her little house. There's really no room for us. I just think that with another month or two, one of the two of us can land a job so that we can remain independent.
So that's where we are. In my profile there are a few different ways to get a hold of me, or you can comment here and I'll send you my address, If you are in a position to help. This is not easy, but we really need a hand. If you've made it to the end of this post, thank you for reading. Thank you for caring.
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