Hi all.
PJ slept thru the night, but woke up at 4am. He had a temp. of 101.6, high, but not as high as yesterday's spike of 102.6. So, I gave him some tylenol, his prevacid with a snack and let him play, which he did for a while. By 6 he was ready for a bottle and to go back to sleep. He woke at 8:30am, fever free. yay. He was good all day, happy, playing, and best of all, he did not throw up!! After yesterday's post, PJ's pediatrician called me to see how he was doing. I love how concerned she is, and on top of his case she's staying... It's not even her weekend to be on call.
She called again this morning, and again, a few minutes ago. Unfortunately, I had to report that although he went fever free all day, it returned this afternoon around 3pm. Went and bought motrin, and gave that to him before he fell asleep. (around 6:30)
I expect we'll be up really early again tomorrow. He still is not displaying any cold symptoms, which I relayed, so she says she'll order blood tests tomorrow if he's still feverish. What causes a fever to come and go? Is it normal? I don't know, that's why I'm asking YOU. lol.
Mom had us over for dinner, she got the urge to actually COOK. It was terrific! Pot roast, mashed potatoes and gravy (PJ loved that) fresh green beans cooked with ham bits for flavoring! YUM. I ate too much and got FULL, only to find out she had chocolate pie for dessert. ugh. I ate some of that too. haha. PJ loved it!! He did start throwing up again late in the day, but much smaller amounts, and after the fever came back. I'm scratching my head about him. Hoping it's nothing, but worried that it's something. Pray for him, will you?
I'll update again tomorrow sometime. Thanks for checking in!
Sunday, August 31, 2008
Saturday, August 30, 2008
My little dude is not feeling well :o(
Well, and other stuff.
I'm waiting for a call back from the nurses line. PJ actually went to the ped's office this am, he had run a low grade fever yesterday, managed by Tylenol. Was cranky, wouldn't nap, then decided that from about 10pm to 2am he was ready to play!! Wow. Anyway, he woke up feverish again this am, and so I called the Ped's and they had me bring him in. He was feeling good when we went in, so we talked about his vomiting, and that the zantac was not helping at all in that regard, that it's been over a month of it and now he's lost a total of 10 oz. Again, not a great big huge amount of weight, but still, he's going the wrong direction, and eventually, it's going to become a problem. She upgraded him to prevacid 1/2 tab once a day. I'll start him on the prevacid tomorrow. His ears look good, a little redness in his nasal cavities, so maybe he's getting a cold. OK, I'll buy that. So now, it's almost 4pm, he's starting to feel hot again, so I give him some Tylenol, then a few minutes later Daniel remarks how hot he feels. So, after trying the ear scan thermometer and getting something different 5 times, I pulled out the old fashioned thermometer lubed it up and took the rectal temp, 102.6. I called the nurses line.
OK, so, she just called me back, and spoke to the Dr. I'm to keep giving him tylenol, and fluids, and if the temp rises, a luke-warm bath. If none of that works, a trip to the ER will be in order. She thinks it's the onset of a cold.
He's pretty unhappy, but not pulling his ears, and really not snotty or cold symptoms, except for his spit up, it's gotten slimy. (sorry for that)
OK - the other stuff: Daniel is still looking for a job in a market that hasn't got any. I've decided to throw my hat in the ring. One of us has to work. I don't want it to be me, but looks like PJ might have a stay at home dad for a time. Basically it's down to whoever finds work first..
Becca's first week of middle school was good and she seems to like all of her classes. Her check up today revealed great hearing, 20-20 vision, a perfect spine, good weight, glucose and bp levels. Yay.
I think that about sums us up for now.
I'm waiting for a call back from the nurses line. PJ actually went to the ped's office this am, he had run a low grade fever yesterday, managed by Tylenol. Was cranky, wouldn't nap, then decided that from about 10pm to 2am he was ready to play!! Wow. Anyway, he woke up feverish again this am, and so I called the Ped's and they had me bring him in. He was feeling good when we went in, so we talked about his vomiting, and that the zantac was not helping at all in that regard, that it's been over a month of it and now he's lost a total of 10 oz. Again, not a great big huge amount of weight, but still, he's going the wrong direction, and eventually, it's going to become a problem. She upgraded him to prevacid 1/2 tab once a day. I'll start him on the prevacid tomorrow. His ears look good, a little redness in his nasal cavities, so maybe he's getting a cold. OK, I'll buy that. So now, it's almost 4pm, he's starting to feel hot again, so I give him some Tylenol, then a few minutes later Daniel remarks how hot he feels. So, after trying the ear scan thermometer and getting something different 5 times, I pulled out the old fashioned thermometer lubed it up and took the rectal temp, 102.6. I called the nurses line.
OK, so, she just called me back, and spoke to the Dr. I'm to keep giving him tylenol, and fluids, and if the temp rises, a luke-warm bath. If none of that works, a trip to the ER will be in order. She thinks it's the onset of a cold.
He's pretty unhappy, but not pulling his ears, and really not snotty or cold symptoms, except for his spit up, it's gotten slimy. (sorry for that)
OK - the other stuff: Daniel is still looking for a job in a market that hasn't got any. I've decided to throw my hat in the ring. One of us has to work. I don't want it to be me, but looks like PJ might have a stay at home dad for a time. Basically it's down to whoever finds work first..
Becca's first week of middle school was good and she seems to like all of her classes. Her check up today revealed great hearing, 20-20 vision, a perfect spine, good weight, glucose and bp levels. Yay.
I think that about sums us up for now.
Monday, August 25, 2008
First Day of Middle School
She's growing up! My baby girl, about to be 12 years old, started 6th grade today. She's excited to start this new phase, summer was a bit of a bore for her, I'm sorry to say. PJ has loved having her home for the summer, and he's going to miss her. I'm going to miss her too! PJ is becoming more demanding of attention, playing by himself in the morning, happy, but wanting someone to play with more and more. She gives me breaks during the day, and we're really going to miss having big sissy around.
It'll be fun helping with homework again, she's taking Spanish, and that should be fun. I speak it fluently, but never taught her, so I can definitely help with that, although I'm probably going to be useless with algebra, maybe she can teach me!
Here she is, my big girl.
Rebecca, you look mad, let's try it again.
Ok, a little better, I guess it's hard getting up at 6 am for the first time in a few months.
THERE'S my class clown! I hope you have a good day, Becca, and make new friends this year, and study hard, and remember how proud I am of you.
It'll be fun helping with homework again, she's taking Spanish, and that should be fun. I speak it fluently, but never taught her, so I can definitely help with that, although I'm probably going to be useless with algebra, maybe she can teach me!
Here she is, my big girl.
Rebecca, you look mad, let's try it again.
Ok, a little better, I guess it's hard getting up at 6 am for the first time in a few months.
THERE'S my class clown! I hope you have a good day, Becca, and make new friends this year, and study hard, and remember how proud I am of you.
Friday, August 22, 2008
Made a new friend today IRL
(In Real Life)
A sweet lady, Kristen, who I met on the internet before PJ was born, decided that almost one year was long enough to wait to meet up IRL. She made the two plus hour trip to Raleigh and we met at a park so the kids could have a bit of fun. Daniel and Becca came along, so we all got to meet Kristen and Ethan. He is so handsome! He loved the swing and the train ride, he'd laugh when his mom would tell me something about him, then we'd laugh, and he'd laugh some more. He gave high fives to Becca and Daniel. PJ was super tired, he missed his afternoon nap and decided to stay awake the whole time, so he wasn't as wonderfully happy as he can be, but he had a good time and wasn't one of "those" children, he was actually pretty good considering how tired he was.
One thing that was funny was there was a couple there, grandparents to 20 month old triplets, 2 boys and a girl... They were on their way out of the park, walking towards the parking lot, when one of the boys took a shine to Becca, he wrapped himself around her leg, put his hands up to her for her to pick him up, and almost cried when he had to leave her. It was really a freaky kind of experience. It was as if he knew her, which of course, he did not. I told Becca it was as if her knew her in a different life, and Kristen called her "The Baby Whisperer" It just confirmed to me that Rebecca's calling is to work with children in some capacity, and she's leaning toward therapist for special needs young'ns. She's terrific. We took a million photos, but our camera has such a slow shutter speed that only a few came out not blurry, so here's the best of them from our first K & E meet. I hope we get to do it again, soon.
A sweet lady, Kristen, who I met on the internet before PJ was born, decided that almost one year was long enough to wait to meet up IRL. She made the two plus hour trip to Raleigh and we met at a park so the kids could have a bit of fun. Daniel and Becca came along, so we all got to meet Kristen and Ethan. He is so handsome! He loved the swing and the train ride, he'd laugh when his mom would tell me something about him, then we'd laugh, and he'd laugh some more. He gave high fives to Becca and Daniel. PJ was super tired, he missed his afternoon nap and decided to stay awake the whole time, so he wasn't as wonderfully happy as he can be, but he had a good time and wasn't one of "those" children, he was actually pretty good considering how tired he was.
One thing that was funny was there was a couple there, grandparents to 20 month old triplets, 2 boys and a girl... They were on their way out of the park, walking towards the parking lot, when one of the boys took a shine to Becca, he wrapped himself around her leg, put his hands up to her for her to pick him up, and almost cried when he had to leave her. It was really a freaky kind of experience. It was as if he knew her, which of course, he did not. I told Becca it was as if her knew her in a different life, and Kristen called her "The Baby Whisperer" It just confirmed to me that Rebecca's calling is to work with children in some capacity, and she's leaning toward therapist for special needs young'ns. She's terrific. We took a million photos, but our camera has such a slow shutter speed that only a few came out not blurry, so here's the best of them from our first K & E meet. I hope we get to do it again, soon.
Thursday, August 21, 2008
Swallow study and upper G.I.
The instructions were to not give PJ anything for 3 hours prior to our 10 am appt. Since he generally wakes up between 5am and 6am and I generally give him his thyroid medicine along with a snack, and then breakfast around 8am. Well, today I gave him his breakfast at 6:45, so he'd be full as close to 7am as possible. We got to the hospital a few minutes before 10, but the registration desk told me I was to register him at the rehab desk. huh? OK, so we scoot over to the rehab dept, (I'm tired by this time because there's construction going on at the hospital, so we parked at the wrong end) and wait to register him. "They" whoever they are, forgot to tell rehab that we were to register him there, so there was the 20 minute phone call back and forth to registration before we actually got to register... uh. So, they took us over to radiology, where we waited, and waited, and waited until NEARLY NOON... and poor PJ was inconsolable by this time, so hungry, and mad because nobody was feeding him. Well, they put strawberry kwik in a bottle of barium, laid him on the xray table and he chugged away. The whole two tests took less than 20 minutes once we got started, and here's what they told me. That his aspiration is minimal and infrequent, no need to change anything about what he gets, except maybe to keep him on a slow flow nipple, and to have his head elevated. Yep. Do those already. They noted very little reflux, but of course, in 20 minutes they wouldn't see it with him. So, tomorrow I'm calling his pediatrician and asking for a Ped G.I. referral. (Thanks, kris10)I also am stopping the thyroid medicine (on the ok from the endocrinologist) for a week to see if that is in fact what is causing the vomiting. I also need to call the endo and let him know that I finally decided to quit the meds for a week to see if that will stop the vomiting. On an up note, I get to meet one of our kids tomorrow, and of course, his super cool mom who is driving an extra hour and a half just to meet us! Yay! I look forward to meeting Kristen and Ethan! Woooo hooooo.
Tuesday, August 19, 2008
I'm having A dinner party!
I've seen this on several of the blogs I try to be loyal to, and thought it was a great Idea.
Here are the rules courtesy of Barking Mad
You are going to have a dinner party! Oh yes you are. Well OK, not a REAL dinner party, but hey, if you're so inclined, more power to ya. Anyhow, you're having this swell dinner party and you are going to invite ten bloggers.
Create a post telling us who you are inviting and what about that person's writing makes you think they'd be an intriguing/funny/interesting person to share a meal with. What have you learned about these people through reading their blogs and what would you hope to learn about them through breaking bread with them?
Please Go to Barking Mad if you do this and sign the Mr. Linky saying you participated.
Here's my list of invitees:
Dan Drinker and his brother Will. Will is making a documentary of his brother Dan's life, and accomplishing so many things with this. He's spending a lot of time with his brother. He's teaching. He's advocating. He's honing his craft. He's creating memories. He's sharing and uplifting the spirits of new parents like me by showing me it's all gonna be fine. Dan's last name is Drinker. My son, also named Dan's (goes by PJ) last name is Barr. Just seems right that I share mine with his.
My online friend Renee at Life With My Special K's. This woman completely amazes me, 4 kids, medical issues at every turn, a husband overseas and she just really keeps it all together. I, being an uprooted California girl too, would really like to meet her IRL, maybe glean some of her "togetherness" from her. Also, knowing that PJ would be born with DS in advance, it was the first thing I looked for at his birth, and I remember thinking - "he looks so much like Kennedy". I should know them IRL, right?
Meredith, and her crew over at Cornish Adoption Journey. I learned of her adventures and become emotionally and spiritually invested in her oldest adopted daughter, Emma. I've read along since before the actual adoption, and cheered for the whole family, but actually PRAYED for Emma during a very difficult time of heart failure and open heart surgery that had a better chance of killing her than healing her. She's thriving today, and I thank God.
Melanie of Baeten Family. Her little man Logan is SOOO cute, and I think PJ looks a good deal like him. I love seeing updated blogs about his progress.
My friend E, or Eileen. This woman fell in love with PJ before he was even born! And she supported us and cheered for us and even sent gifts! (Thanks again, E, for the bouncy seat!) She's a great friend who I want to meet IRL, and hope to, one day.
Shelley over at Husehold 6.
She's inspirational. Another military wife, who is strong and kind and together. She and her husband went to the ends of the earth to collect her kids, and I admire them.
Kacey at Ella Grace with the pretty face. We have to meet. PJ and Ella Grace are gonna fall in love one day. My only issue is, who moves where? Them to NC? Or us to WA? LOL.
Leah, of The Garden of Eagan,. I am encouraged by Leah, who has a life, AND an 11 year old girl. I love that she's discovering her adventurous side, acting on it, and sharing her wonderful times with us.
Charissa, another mom who needed one more, special child, and went and found her. These mom's make my heart sing. So much faith.
Dave atChewing the Fat. I recently was pointed in the direction of his blog, and am, in fact, still catching up. I find him to be very well spoken, a great advocate, and very thought provoking.
There are many others that I would invite, if I were really having this party, and I could somehow get us all in the same location, All of the blogs I keep up with have really good people writing them. I appreciate all of you, thanks for being my teachers.
Here are the rules courtesy of Barking Mad
You are going to have a dinner party! Oh yes you are. Well OK, not a REAL dinner party, but hey, if you're so inclined, more power to ya. Anyhow, you're having this swell dinner party and you are going to invite ten bloggers.
Create a post telling us who you are inviting and what about that person's writing makes you think they'd be an intriguing/funny/interesting person to share a meal with. What have you learned about these people through reading their blogs and what would you hope to learn about them through breaking bread with them?
Please Go to Barking Mad if you do this and sign the Mr. Linky saying you participated.
Here's my list of invitees:
Dan Drinker and his brother Will. Will is making a documentary of his brother Dan's life, and accomplishing so many things with this. He's spending a lot of time with his brother. He's teaching. He's advocating. He's honing his craft. He's creating memories. He's sharing and uplifting the spirits of new parents like me by showing me it's all gonna be fine. Dan's last name is Drinker. My son, also named Dan's (goes by PJ) last name is Barr. Just seems right that I share mine with his.
My online friend Renee at Life With My Special K's. This woman completely amazes me, 4 kids, medical issues at every turn, a husband overseas and she just really keeps it all together. I, being an uprooted California girl too, would really like to meet her IRL, maybe glean some of her "togetherness" from her. Also, knowing that PJ would be born with DS in advance, it was the first thing I looked for at his birth, and I remember thinking - "he looks so much like Kennedy". I should know them IRL, right?
Meredith, and her crew over at Cornish Adoption Journey. I learned of her adventures and become emotionally and spiritually invested in her oldest adopted daughter, Emma. I've read along since before the actual adoption, and cheered for the whole family, but actually PRAYED for Emma during a very difficult time of heart failure and open heart surgery that had a better chance of killing her than healing her. She's thriving today, and I thank God.
Melanie of Baeten Family. Her little man Logan is SOOO cute, and I think PJ looks a good deal like him. I love seeing updated blogs about his progress.
My friend E, or Eileen. This woman fell in love with PJ before he was even born! And she supported us and cheered for us and even sent gifts! (Thanks again, E, for the bouncy seat!) She's a great friend who I want to meet IRL, and hope to, one day.
Shelley over at Husehold 6.
She's inspirational. Another military wife, who is strong and kind and together. She and her husband went to the ends of the earth to collect her kids, and I admire them.
Kacey at Ella Grace with the pretty face. We have to meet. PJ and Ella Grace are gonna fall in love one day. My only issue is, who moves where? Them to NC? Or us to WA? LOL.
Leah, of The Garden of Eagan,. I am encouraged by Leah, who has a life, AND an 11 year old girl. I love that she's discovering her adventurous side, acting on it, and sharing her wonderful times with us.
Charissa, another mom who needed one more, special child, and went and found her. These mom's make my heart sing. So much faith.
Dave atChewing the Fat. I recently was pointed in the direction of his blog, and am, in fact, still catching up. I find him to be very well spoken, a great advocate, and very thought provoking.
There are many others that I would invite, if I were really having this party, and I could somehow get us all in the same location, All of the blogs I keep up with have really good people writing them. I appreciate all of you, thanks for being my teachers.
Preparing for Buddy Walk
The donate button is now on my blog.
It's also on my myspace
click here.
This will be our very first year participating in Buddy Walk, and we hope that everyone will help to make it successful.
The funds that we raise go to help our local area DS Association. Triangle Down Syndrome Network
Since this is our first time, I'm sure there's plenty of pointers from those more experienced. Please know that all advice is WELCOME HERE.
It's also on my myspace
click here.
This will be our very first year participating in Buddy Walk, and we hope that everyone will help to make it successful.
The funds that we raise go to help our local area DS Association. Triangle Down Syndrome Network
Since this is our first time, I'm sure there's plenty of pointers from those more experienced. Please know that all advice is WELCOME HERE.
Wednesday, August 13, 2008
Happy 11 months, baby boy!
OK. Got some bath time photos, he's enjoying the big tub, and can splash all he wants without making too much of a mess. I bought one of those ring things with the suction cups, but it wont stick in either tub, I guess because the tub bottoms are dimpled?
I had the pediatric endo call in a generic rx for the thyroid meds and we started that today, hopefully will see a difference in throwing up (as in less in qty and frequency)
For those of you my friends who pray, please do, for my husband to find a job and fast. He was laid off today, the company is a small time financially inept and irresponsible one, and had to let go more than one today, and my DH was among them. I would appreciate prayers, positive energy, whatever ya got.
I had the pediatric endo call in a generic rx for the thyroid meds and we started that today, hopefully will see a difference in throwing up (as in less in qty and frequency)
For those of you my friends who pray, please do, for my husband to find a job and fast. He was laid off today, the company is a small time financially inept and irresponsible one, and had to let go more than one today, and my DH was among them. I would appreciate prayers, positive energy, whatever ya got.
Saturday, August 9, 2008
Here and there
So, I decided I'm going to try to update this blog on a more regular basis, because maybe mundane is not boring for some, and maybe you (the reader) take some pleasure in knowing what's going on in our life. And who am I to keep that from you?
Let's see... Today, Hailey and Azariah, my 2 granddaughters are spending the night.
I went and picked up pizzas for dinner (5.55 ea at dominos).
PJ is great, except he's still having days where the zantac doesn't seem to work (today being one of those days) He throws up. Last night he did the "suck on the bottle then arch the back and cry" thing. He has a swallow study and an upper GI later this month, so once that's done we'll know which way to go with treatment.
He still has only one tooth, is still crawling, sort of, on one knee and on one foot. Still very unsteady. Pulling to a stand like a champ. spitting rasberries, not so cute anymore. now, in addition to clapping, he puts his hands in the air waiting for someone to say "so big". It's really cute because his little arms are so short, they barely come to the top of his head. I'll try to get a picture of that. He's starting to sing a little bit, I've had to guess that's what it is, because it sounds like aaaaaaaaaaaaaaaaaaaaaaaaaahhhhhhhhhhhhhhhhhhhhhhhhhh ahhhhhhhhhhhhhhhhhhhhhhhhhhh aaaaaaaaaaaaaaaahhhhhhhhhhhhhhhh. And every now and then he jumps up and down as if to dance. He understands container play, dumping, removing, and putting in. He can push the button on his exersaucer to get Elmo to sing to him (cause and effect) and he's getting a little freer with his laugh, which is really only a chuckle, but I'll take it.
Becca's getting ready for middle school, starts later this month. Daniel is still working, and I'm still at home. Mom comes a few times a week, and runs us to our dr appts and grocery trips. She's really great. (Thanks Mom!!)
So, that's it from here for now. We're happy, we have love, and good health.
hugs!
Let's see... Today, Hailey and Azariah, my 2 granddaughters are spending the night.
I went and picked up pizzas for dinner (5.55 ea at dominos).
PJ is great, except he's still having days where the zantac doesn't seem to work (today being one of those days) He throws up. Last night he did the "suck on the bottle then arch the back and cry" thing. He has a swallow study and an upper GI later this month, so once that's done we'll know which way to go with treatment.
He still has only one tooth, is still crawling, sort of, on one knee and on one foot. Still very unsteady. Pulling to a stand like a champ. spitting rasberries, not so cute anymore. now, in addition to clapping, he puts his hands in the air waiting for someone to say "so big". It's really cute because his little arms are so short, they barely come to the top of his head. I'll try to get a picture of that. He's starting to sing a little bit, I've had to guess that's what it is, because it sounds like aaaaaaaaaaaaaaaaaaaaaaaaaahhhhhhhhhhhhhhhhhhhhhhhhhh ahhhhhhhhhhhhhhhhhhhhhhhhhhh aaaaaaaaaaaaaaaahhhhhhhhhhhhhhhh. And every now and then he jumps up and down as if to dance. He understands container play, dumping, removing, and putting in. He can push the button on his exersaucer to get Elmo to sing to him (cause and effect) and he's getting a little freer with his laugh, which is really only a chuckle, but I'll take it.
Becca's getting ready for middle school, starts later this month. Daniel is still working, and I'm still at home. Mom comes a few times a week, and runs us to our dr appts and grocery trips. She's really great. (Thanks Mom!!)
So, that's it from here for now. We're happy, we have love, and good health.
hugs!
Subscribe to:
Posts (Atom)